We have created this page because we believe that now, more than ever we can find a way to cure this syndrome that has taken so much from our Allie. Angelman Syndrome takes away the ability for Allie to do activities that many of us take for granted whether it be climbing a slide, running into a sprinkler or even picking up a fork to enjoy a meal. The continued research funded by FAST will help ensure that perhaps, one day, the impossible will become possible. To us, that would be the greatest gift of all.
Individuals with AS typically have balance issues, motor impairment and debilitating seizures. Some patients never walk. Most do not speak. Despite its often devastating effects, Angelman syndrome is a simple disorder involving only one gene. FAST scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for Angelman syndrome to clinical trial within two years – but we need your help.
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!
The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!