Covey Hopewell (left) was born with Angelman Syndrome. He is the oldest child of John and Diane Hopewell. His sister, Lucy, also has Angelman Syndrome. He was a wonderful, sweet boy full of energy and love. Tragically, Covey passed away on July 4, 2016 at the age of 11.
We have created this page as a way to honor him and provide research for a cure.
Because of recent advancements in the understanding of AS, treatments for this disorder are not only possible, they are probable.
Individuals with AS typically have balance issues, motor impairment and debilitating seizures. Some patients never walk. Most do not speak. Despite its often devastating effects, Angelman syndrome is a simple disorder involving only one gene. FAST scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for Angelman syndrome to clinical trial within two years – but we need your help.
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!
The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!