We have created this page because we have a son named Evan with Angelman syndrome (AS), and we are inspired by the work being done by FAST (Foundation for Angelman Syndrome Therapeutics). Because of recent advancements in the understanding of AS, treatments for this disorder are not only possible, they are probable.
Justin Bomgren and I are planning a walk to raise money for a cure for Angelman Syndrome on May 20th, 2017 starting at Reynolds Elementary School in Village Green. We will be starting the walk at 9 a.m. The registration fee will be $20.00 and can be brought the day of the event. Kids are free. We will be posting a sponsor sheet that you can also bring the day of the event if you choose. Please note that every dollar we raise will be directly donated to FAST (Foundation for Angelman Syndrome Therapeutics) in Evan's honor. Please share this page to spread the word to any of your family or friends. People that are unable to attend this event can donate directly to this page. Please let us know in a private message by May 14th, 2017 if you or anyone else you know will be planning on attending so we can plan accordingly.
Individuals with AS typically have balance issues, motor impairment and debilitating seizures. Some patients never walk. Most do not speak. Despite its often devastating effects, Angelman syndrome is a simple disorder involving only one gene. FAST scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for Angelman syndrome to clinical trial within two years – but we need your help.
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!
The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!