I’ve created this page because I have a close friend who's family has been touched by Angelman Syndrome.
Before Zev's diagnosis I had never heard of this rare debilitating genetic disease.
After learning about FAST (Foundation for Angelman Syndrome Therapeutics), I saw the amazing work they are doing and how close they are to actually curing Angelman Syndrome. This is very exciting! On
Saturday May 27, 2017 I will be running the 10KM RACE for Zev at the upcoming Tamarack Ottawa Race Weekend - Please help me raise funds to cure ZEV and all of the other angels.
A cure is so close we can taste it!
So lets "stick a fork" in Agelman Syndrome once and for all!!