We've created this page because our sweet Teagan has Angelman syndrome (AS) and we're inspired by the work being done by FAST (Foundation for Angelman Syndrome Therapeutics). Because of recent advancements in the understanding of AS, treatments for this disorder are not only possible, THEY ARE PROBABLE. We are so close!!
April 10, 2017 marked TEN years that Teags has been living with the effects of this disorder. TEN years of seizing, TEN years of delays, TEN years of not being able to say a word about her dreams, pains, ideas or hopes for the future. Almost none of us can begin to comprehend this fact. She may not be able to tell us YET, but we know that Teagan's future is bright with the hope and knowledge of the treatments that will one day come her way. FAST has the drive, the genius, the plan, but of course what is missing is the complete funding. Please consider a donation in honor of the TEN years that Teagan has been working hard to be the best she can be with what she was given.
**Individuals with AS typically have balance issues, motor impairment and debilitating seizures. Some patients never walk. Most do not speak. Despite its often devastating effects, Angelman syndrome is a simple disorder involving only one gene. FAST scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for Angelman syndrome to clinical trial within two years – but we need your help.
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!
The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means everything!